Tuesday, July 10, 2018
Crying in a hammock is not recommended
Did you know that a hammock, while wonderful for seclusion and relaxation, is not an ideal place to attempt a good cry? Some of you are ahead of me on this one. You're already nodding as though this should be obvious.
Well, it wasn't to me. I was taking advantage of the seclusion and relaxation when one of the *warning, sarcasm ahead* super side effects of chemo snuck up on me: mood swings.
I've maintained all along that going through chemo is like being pregnant because it's a total body takeover kind of deal. Today I was doing some reading (until my eyeballs were ready to fall out, actually, but never mind that) and discovered some things I probably should have figured out earlier. This I will blame on yet another side effect: chemo brain. Chemo brain is like pregnant brain where your thinking is fuzzy due to fatigue, side effects of medications, anxiety, etc. Apparently, chemo causes a decrease of female hormones, which, as we all know, does goofy things to otherwise (mostly) rational women and girls. At certain times of each month, when hormones are doing their thing, females can be perfectly fine one moment and then raging over the smallest, most innocent infraction (real or imagined) and then in tears the next instant because they're angry about being angry.
Sounds like my week.
Aha! Hormones! Who knew?!
I've found myself raging over how many decisions need to be made throughout this medical adventure and yet how many of them are out of my realm of control. I've become incensed at how many other people want to make decisions for me in areas I CAN control. I've been disappointed by the illusion that when you become a grown up you can call the shots. Adulting is full of double edged swords and catch-22s and "haha, no tag backs!"
And I'm tired.
But am I tired because everyone has been telling me how tired I'll be? Am I tired because everybody reminds me, "it's cumulative"? Or am I tired because of the meds/toxins being pumped into me? Am I tired because I'm a mom? Am I tired because I don't drink enough water or caffeine or I don't get enough protein or not enough sleep or not enough exercise or...?
Some of you are nodding for different reasons now. Some of you are remembering (or living), "oh yes, that sounds like being pregnant or a parent of a newborn. Am I drinking enough? Am I eating enough? Am I eating too much? Do I weigh enough or too much? Is the baby growing enough? Do I have enough fluid? Do I have enough milk? Are they nursing enough? Are they getting enough to eat? Are they growing enough?"
Some of you are replaying the thoughts in your head: am I good enough? Will I ever be good enough? Is this worth it? Am I worth it? Are they worth it? Am I supposed to be giving 50% and they're supposed to be giving 50% to make 100%? Or am I supposed to be giving 100%? What if they don't? What if I can't? What if...?
I'm sitting here, rubbing my stubbled head in frustration. Darn chemo brain. Can't even think; I sound like a fleet of hamsters on wheels just squeaking along in circles, not making any sense. I am surrounded by information from every source imaginable: the internet, books, friends, yet I still don't have enough information to make the decisions that need to be made.
In short, how does one decide if they want boobs or not? I am wrestling with that a lot lately. How does one make a coherent decision that will last for, God-willing, at least the next 40 years of one's life? For those of you who are new to this game, there are essentially 4 main options for those facing surgical removal of at least one breast (that's me, in case you're curious. Right side's gotta go. Left side is undetermined at this time.) You have your removal without reconstruction which is essentially "going flat" as your first option, reconstruction from your own body (there are multiple areas to choose from such as rear end, abdomen, and back) as your second, or implants of saline (third) or implants of silicon (fourth). Those last two options come with what I'm thinking of as "extended surgery plans" as they may need refilled or readjusted, requiring more surgeries down the line. Each comes with their own set of pros and cons.
Now try making the decision while on drugs that affect the taste of foods you eat, wreaks havoc on your emotions because your hormones take a nose-dive, while trying to stay positive and not freak out about going into surgery in the first place with the catheters and fasting and breathing tube and the IV and all that jazz. How am I supposed to decide when my brain feels foggy and I can't take the usual comfort from a pint of Ben & Jerry's (not that that's stopped me from eating ice cream, who are we kidding here, but still)?
To add insult to injury, or the other way around perhaps, I even finally have the swollen ankles that apparently comes with this territory (and pregnancy!)
I suppose I should give myself grace for bursting into tears in the hammock. However, due to my good friend Gravity, when you cry in a hammock the tears will coast down your face and behind your head and soak the back of your neck instead of down the front of your face and into your cleavage (which, yes, I realize that will be different after surgery as well. See? Total body takeover). Your nose will clog up even faster than usual, which I wouldn't have thought possible, and you might even get tears in your ears. As there is no graceful way in or out of a hammock, take your tissues in with you before you start your good cry. Better yet, skip the cry until you can watch a good movie. You're welcome for the Public Service Announcement.
And yet I really am okay. I don't want the tenderhearted among you to fret. I now know that hormones doing their weirded out thing is a contributing factor along with fear of the unknown. Tears won't hurt me. I'm sure I'll feel more on solid ground once I have that surgical consult to go over options with a professional, where I can ask my questions, talk about pictures I've seen, and so on. As usual, there is no convenient neon box lighting up which says, "This is what you should do. Love, God." Not that He doesn't play a part in the decision making, it's just that He's got me no matter what I will eventually pick, which does help with perspective when I get freaked out.
How can you help? I'm so glad you asked. I realize this surgery can't happen until mid-September and it is only July, but let's get this party started. You can be praying for my surgeon, my team, clarity in my decision making, peace with whatever decision is made, smooth surgery with no complications, that I wouldn't get sick from three school's worth of germs coming home with all three kids while I'm recovering, flexibility as our family adjusts to my recovery time, that I be a good patient and follow orders to not lift and that I can start the stretches and exercises soon after to help with recovery and range of motion, that I will be able to sleep as I heal because I am a stomach sleeper, that in the hardest moments (like when the bandages come off, raw wounds, and there are surgical drains to empty-yikes) that I will remember that it's not going to be like that forever and that while my new normal will be different it will eventually become my new normal. Pick and choose what you like- I gave you lots of starting points. You'll even think of more, because hopefully you do not also have chemo brain!
And mucho thanks to those of you who have already kept me covered. I appreciate every prayer you send on my behalf. I really have been overwhelmed with mail, gifts, meals (goodness, the meals!), the wonderful hugs, the "just checking in"s and the "whaddya need"s. Thank you. Thanks for being in it with me for the long haul. Please keep them coming!
And don't cry in a hammock. Unless it's from laughing too hard, I suppose, but be careful as that has its own risks!
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4 comments:
Of course I'm praying.. Love you Val. PS this is Myron
Love you Val ❤ Chemo brain and hormone craziness is a real thing, and it happens to men too! Which has been a kind of "payback" if you will,for me with Michael. Lol He may have a little inkling into what its like to be pregnant.... a little. Take a minute, or heck a bunch of minutes and cry as much as you need. Maybe not in a hammock, but cry. Our bodies need that emotional release as much as they need to laugh.... and I know you laugh a lot 😉, so give yourself some grace.
Know that your prayer warriors have got you covered as you start this part of the journey. And like you said, God already knows what decision you make and He has ordained it for His glory. Prayers and love my friend.
Val:
We’ve been praying for you! I will lift you up at our small group as well with these prayer requests! Being as strong as you are, makes me believe you’ve got this!
Val, thanks for letting us all hang with you in the Hammock! Hoping that with chemo brain you day is good.
My Physical Therapist asked me this yesterday?
Why did the Mermaid wear sea shells?
Because she had out grown her A shells and B Shells...
Too soon? Maybe it should be she had out 'groan'...
Hi Scott!!!
Love ya, -Samuel
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