I am a little alarmed at how early the chemo side effects have set in. I worked on that previous post twice and still forgot to relay the funny story. *sigh* Bear with me, folks.
One of the 4 anti nausea drugs in the premedication umbrella-
-which makes me laugh because the wording is funny. I only get two chemo meds. I have four anti nausea meds. And they're called the "premedication" part? Hahaha! I am definitely living yet again the courtroom scene from "What's Up, Doc?" where the Judge is lamenting his drug dependence. If you haven't seen it, go track it down. Here's the specific snippet I mean but the whole thing bears seeing.-
-is apparently a steroid. The first med is a quick push one and went into my port just fine in a matter of less than a minute. The second one, the steroid, made me feel burny and tingly in places that I knew I didn't have a UTI so I assumed it was from whatever drip I was getting and that it was temporary. However, then I started to feel flushed and began to see tiny sparkles. My Doc was talking to me, my Lisa was there, there was also a pharmaceutical student present, so I interrupted to announce, "Um, I'm starting to see sparkles and it feels like I'm breathing through a straw...?" They all looked closer at me and the Doc says, "oh yep, turn that medication off and get a nurse." The meds get shut off, I feel the heat start to drain back out of my face, and the arriving nurses reassure me that I just got that steroid too fast, it's already in, all will be well. Note into chart about a slower steroid. Got it. Okiedokie. Whew, hot flash. My Doc uses it as a teachable moment and points out how my color is already better, asks if I'm also experiencing burning and tingling, and yes indeed, it was a reaction to receiving a steroid.
"Have you ever had a steroid before?"
"Umm, I don't think I have, actually!"
She assured me that oral ones for, say, poison ivy or some such would still be fine, and reiterated that this one was just pushed too quickly for me, but my body has since caught up and all is well. Moving on...
Everything else was fine, no surprises other than I expected a hanging bag of Red Devil and it turned out to be in a syringe that the lovely nurse has to physically sit there and push over a few minutes, which lessened the impact of the googly eyes since we were the only ones who could see them, haha, but oh well.
However, try explaining later to your husband about a steroid reaction and then have him turn to your bestie questioningly and have her answer, "she was redder than her sweater." Poor love of my life. But now we know. AND I was right about the burny and tingly feeling dissipating right away.
So Daddeeeeee, when you're up next time, we will ask for a slow steroid. No worries! I got you!
That was all on Monday. Some of those anti nausea meds last for 72 hours so the next few days I felt... chemically... I guess is the best way to put it. Not truly nauseous even when they wore off but felt like I could be, so I took some of the prescription they'd sent me home with, heeding Dada's advice to "not be a hero" and Lisa's advice to "stay ahead of it." I'm eating a ridiculous amount of small meals and can absolutely see why the Doc cautioned that these particular chemo meds can make people gain weight: it feels better to have something in my stomach. She also warned that chemo weight is harder to lose than regular, but finished with "but I'm not worried about you because you're active and you'll be okay." I devilishly mentioned that the holidays were in between now and when I'll be finished so who would ever know if it was the chemo or the yummy foods? Hehehehe. I'm again struck by how similar chemo is to pregnancy: nausea, brain fog, weight fluctuation, craving something but not having any idea what, laying down to close your eyes and awakening hours later.
Thank you to my school friends for the ginger chews and to my friends who've sent candies and to my hubby who found me coconut bites. Y'all rock, as usual!
Yesterday, four days after chemo, I woke up and felt like my brain was actually clearer and more myself. I still feel that way today and haven't taken any meds other than my usual allergy pill, multivitamin, and calcium with vitamin D. I've had my breakfast and am cautiously optimistic for a nice weekend. My Doc said to keep track of what I felt when so we can determine "my pattern" and predict what I'll need and when.
Next week I'm scheduled for a bag of fluids and a blood draw, both through the port so no worries, and my radiation consult. I have extremely mixed feelings about all this radiation business. I've heard from several sources that you can't re-radiate the same area, so why the tumor board wants me to have a consult about it boggles me. Plus, they mentioned I could be a candidate for proton therapy, but when I look that up it says it targets a tumor, which I no longer HAVE, so again, I'm stymied. Guess that's why I gotta talk to the experts. I asked my Doc about it during chemo and she set me straight: don't dismiss it out of hand. We want to throw everything at this, so go see what they say.
Yes, ma'am.
As far as the whole armpit area/ bypass surgery part is going, it's been 6.5 weeks since surgery and range of motion is definitely improving. I'll get some pictures up at some point, but things are looking decent-ish. I'll never win any Sex Goddess Body awards but since I was never aiming for that anyway, no big loss. I'd rather have ice cream!
Moving is definitely better for me than sitting, and sleeping is wonderful. Enjoy that extra hour this weekend and do NOT feel guilty if you use it for sleeping! I'm waving my wand over here and giving you permission to use it however it will most bless your life. *swish swish* Don't forget to check your smoke detectors and have a wonderful weekend, everyone!