"Satan tends to attack people and places of strategic importance."
Wednesday, December 25, 2024
A Christmas ramble
"Satan tends to attack people and places of strategic importance."
Monday, December 23, 2024
I'm still kickin'
Hiya and happy almost holidays! The title is something my Nana used to say when asked how she was doing. I felt it was fitting to sum up how I'm functioning these days.
For those of you who are panicking because you're not ready, take a deep breath and know that we are right there with you. For those of you who keep getting more things tossed at you in this game called life, take another breath and be still a moment. You're allowed. There is hard stuff happening, and you, too, are not alone. For those of you experiencing a very Blue Christmas, big hugs from us, and more deep breaths, and just do what you can. And if you can't, that is okay, too. Just be. Just breathe. Please know you're loved.
I had the last of the AC part of chemo on Tuesday last week and you guys must have been praying hard, because I was expecting next-door-to-end-of-the-world awfulness but experienced next-door-to-exhaustion instead. Thank you! The nausea has not been fun, but it has been manageable, and I'm still taking as many naps as possible, which helps. The brain fog is real; I've caught myself making out multiple Christmas cards to the same person, so if you end up with three or end up with none- it's my fault either way. Sorry. Next year will be better. Doing a lot of facepalming over here. But, as my Nana said, "I'm doin'."
The next step will be weekly infusions of Taxol for all of the next three months. Supposedly that will be easier on my system and my doc thinks I will handle that well. The new wrinkle will be hands and feet neuropathy, which I'm a bit nervous about as I've been fortunate to never have to deal with that yet... guess we'll see how it goes. Doc said if it's terrible they can dial back the dose of Taxol, but I want this round of cancer to be the last ever round of cancer so I kinda don't want to inhibit any of the meds... no sense stressing over it. It'll be what it'll be. We will figure it out.
Since that doesn't start until January, I have the rest of this month to recover, gain weight I mean "enjoy Christmas goodies", attempt to finish my cards before Christmas, get my far and wide ranging ducks back in a row, take the boys to the dentist for their appointment, enjoy time with loved ones, hopefully bake some and take more naps. I am very much enjoying not waiting at the bus stop while the temps are in the teens, but I'm sure there will be plenty of that in 2025.
Don't exhaust yourselves this season chasing down the Stuff or trying to do All The Things. Make the time for the people and activities that fill your spirit back up, and know that you're loved more than you realize. Be good to yourself! You are worth it!
Drink water and wash your hands. The germs are legion!
Wedding photos
We had the privilege of attending Dada's cousin's daughter's wedding last weekend and we thrilled to cheer on the lovely couple. Thankfully the weather cooperated, we had dry roads both coming and going, and sunshine during the day with moonlight on the return trip. I'm so glad it was before chemo so I could make the trip and enjoy the time together!
Holiday concert
Thing Three performed in his holiday concert last week. He was tickled because they got to wear their fancy dress uniforms- we had never seen them before. So snazzy! He cleans up pretty good, like his Dada. They sounded terrific and even had the Grinch as a guest conductor. Always a highlight to our holiday season.
Wednesday, December 18, 2024
Check in
Just checking in. How's everybody doing in the relentless lead up to Christmas? Those of you missing loved ones due to distance or the afterlife, are you doing okay? Text if you need to talk. I'm here. Church workers, do you have the support you need? We appreciate all you're doing to get ready for Christmas; thank you. Teachers, you hanging in there? I've been hearing varying descriptions of the classroom craziness and am praying for all of you heroes, haha! You can do it. Just a few more days. Keep breathing!
Another reason to celebrate: I am officially done with my Red Devil side of chemo! My doc said all my blood cell numbers were good to go, told me I looked wonderful, asked if I was up for it, and I declared, "let's get it over with!" I had a good day with my Zita- thanks, babe! Hooray for another thing crossed off the list. Whew! It has been a YEAR of ridiculousness, no doubt. And as for 2025...
My next appointment will be in January when my Taxol treatments kick off. Doc claims that one will be easier all around though I should expect neuropathy in my hands and feet for a few days after each treatment. Always some new wrinkle to add to the learning curve. We'll see how that goes. Right now, I'll just be over here pumping myself full of water and salad to keep things flushing out and moving along and doing small things as I can accomplish them. Looking forward to Thing Three's holiday concert, I have a visit with my plastics doc and PT this week, and otherwise it's real life and Christmas prep.
Hang in there, everybody. Be safe, stay off the egg nog, sneak a cookie when nobody's looking, and take care of yourselves, not just everyone else. You're allowed naps. You're allowed coffee with a friend out of the house. You're allowed to decorate the tree with every ornament you own or just leave it lights only if that makes you happy! Go for a walk if the temps and the ice aren't intimidating. Play the Christmas carols or blast you own favorites. Have a bubble bath- when was the last time you had one? The only thing in our tub is spiders... it is sadly neglected and I may need to have a date with it after evicting the small predators since NOT all drains lead to the ocean...
My point is, the year is rapidly drawing to a close. I know you parents with kids at home are overwhelmed and everyone is counting down the days for school to be done for awhile. Wash those hands and eat real food and remember to hydrate. Breathe. You are all so loved. Enjoy your holidays the best that you can and don't stress about perfection. Be merry and bright! xoxoxxo
Wednesday, December 11, 2024
3700
No, that's not an amount for a bill for any of my surgeries or chemo or insurance for driving Ori onto rocks, though good guesses all. That's the number of posts on this blog! Can you even believe it? It's like I have something to say... or something. Who'd have thought? (Nana, in the afterlife, is chuckling to herself and snarking, "anybody who ever met you! Are you kidding? All those times I had to separate you from Tammy at nap time because you wouldn't stop talking?!" Yes, well, there is that.
I'm sort of just checking in. I miraculously have zero doctors' appointments this week and am on the upswing after mostly a week of chemo crumminess. To say I'm not looking forward to next week's treatment is an understatement of epic proportions. However, it IS nice to know that I will sort of be feeling myself come Christmas, AND the AC part of chemo will be over with. Hooray! Merry Christmas to ME! As they used to say in karate, "LAST ONE, BEST ONE" though I'm not sure that quite applies here as the results are cumulative and I felt like... well, to quote our youngest, "dogwater" would be pretty applicable. I'm not sure if he means dog pee or the scum in their drinking water from their backwash because I'm afraid to ask, but either way, yeah, that kinda fits. To have the inside of your mouth feel sandblasted, to have the chemical roiling of your stomach, to feel like you've been dragged through solidifying cement with the accompanying pounding of your heart when all you've done is climb up a single set of stairs... I'd say dogwater fits.
Yes, I am taking my anti nausea meds, though I could take more of them, though they come with their own side effects and I'd rather limit all that nonsense. Yes, I'm climbing back into bed (YAY, BED!) at every opportunity. I'm even feeling less guilty about it because my brain knows healing is hard work even though my spirit wants to Go Do Stuff. My Lisa says, "go back to bed for all of us who can't!" I figure I'm taking one for the team. Teehee. I should be drinking more, so if you talk to me, ask where I am water-wise and tell me to go take some sips. *Reaches for her glass of water whilst rolling her eyes*
No, our Christmas tree isn't up yet, but our wreaths are, so that's progress. At this rate, once we get it up it might have to stick around until my birthday. Those of you who know us are asking, "how is that different from any other year?" Hush, you.
For those of you asking about meals for us, bless your sweet hearts. As I was telling my friend the other day, food is tricky right now, though this week should be better. Dada is still doing no carbs, the kids are pretty much all carbs, and I am absolutely all over the map like a pregnant woman. I will have a sliced baby cucumber. Then an hour later maybe cheese and crackers. Then another hour after that perhaps a little bit of meat or some peanut butter toast. Last night I was eating single Cheerios out of the box, one after another, while I watched TV. For lunch, I plan to devour an entire head of butter lettuce* with veggies and cheese and croutons (Thing Three is at school so I'll only have to fend off Thing Two since Thing One doesn't emerge for awhile yet) and maybe a can of tuna on it and it is going to be DELICIOUS and then my mouth won't feel like I've licked a salty camel straight from the Sahara.
*In a text from Dada, that came out "butthead" lettuce so we will be henceforth calling it that.
All in all, and my doc is in agreement with this, I'm doing well. It doesn't always FEEL like that, but as I'm also not praying to the porcelain god, I'll take it. I may look like a drunken sailor on land who is using the wall with one hand to stay stable, but I'm still moving, thank you, Jesus. Today I'm actually on my second load of laundry**, have swept the kitchen floor, made phone calls which I despise (who's with me- where are my "I'd rather die than talk on the phone" peeps?), renewed Pepe's license plate, got some mail ready to go out, and some other stuff. I'm hogging 2/3 of the couch with paperwork and have displaced Thing Two completely. I have a pile of Stuff on the floor in the Old Lady Room that I need to deal with, but we are getting there.
** The second load is dog towels and blankets. Miss Honey, who will be at least 10ish years old this week, relieved herself on the hall rug before Thanksgiving and we didn't have time to deal with it other than baking soda and vacuum it before we travelled, so we lugged it outside where the weather could rain and snow on it to it's heart's delight. We brought it in a few days ago, still smelling of baking soda. The Idiot Bos decided to lick it in a bunch of places last evening while we were having dinner, then proceeded to barf on a different rug when his stomach realized it couldn't digest dog hair, dirt, and baking soda. Hence the load of towels. How he can manage to NOT throw up rat poison when he needs to but CAN vomit other stuff remains a mystery. Dumber than a box of rocks. Seriously. That's insulting to rocks. He's no smarter now than he was when we got him 7.5 years ago. Somebody save us. I am never picking out a dog again. And if Honey doesn't quit pooping on the deck, I am going to ask Santa not FOR a dog, but to kindly take both of ours!
So I'm off to make my salad. Have a wonderful hump day!
Wednesday, December 04, 2024
Rocks defeat cars as well as scissors
Grab a Christmas cookie and a hot drink. This'll be lengthy.
Monday, December 02, 2024
Fluid fugazi and Fireballs
My oncologist let me delay my third chemo so that I could fully enjoy Thanksgiving. Enjoy it I did! I delighted in everything tasting the way it should. You know that line from "Into The Woods" about "and there was far too much food..."- well, that was surely us. And a lot of America, I bet!
Last week I went in for pre-travel fluids so I'd be well hydrated and plumped up, I guess, haha. On the drive there, I figured, "everything's still tasting right and I don't have any mouth sores yet... let's try a Fireball!" Imagine my delight when I didn't breathe fire and enjoyed my candy while driving! Wahoooooo!
Upon arrival, the nurse was cheerful and we were discussing Thanksgiving plans with family before she grumbled about my port being a stinker. Apparently sometimes fluids can go IN but drawing blood OUT doesn't work, and since both parts of that are important, she had to call someone from the lab to come stick my arm instead. No big, and apparently I was hydrated enough that she got it on the first try, mercifully (especially as I hadn't been thinking about drinking, assuming they'd access my port)! However, I wasn't super thrilled. The entire point of a port is to save my arm veins- no touchie! Grrr!
An option she gave was to administer a blood thinner and then she would check the port every half hour for up to two hours to see if the blood thinner was doing its job. Or we could skip it and just have the lab do it. I went for the second option as I've never had blood thinners and have no idea what they'd do to me, especially right before heading out of town for the holiday. Not It, thanks.
So if all y'all are still praying, please mention that all involved parties would love for the port to do it's darn job (both parts) from here on out. Thanks!