Showing posts with label blood clot. Show all posts
Showing posts with label blood clot. Show all posts

Tuesday, July 14, 2026

I'm still here!

 Hi! You may remember me. I used to be a blogger, haha.

Sorry. Summer sends routine out the window in both good and bad ways. I'd like to think I'm getting more sleep, but I am pretty sure it's only that bedtime anad waketime have shifted further back. The city pool is open, so I've been walking the lazy river... well, duck-walking it actually, as it's less than three feet deep and I'm trying to keep my top half submerged to use the water pressure as compression to do my arm exercises. We went on vacation and are home again, so that's another cause of radio silence. And now there's Christmas in July party prep and a family get together and a summer check-in with students and we went to the drive-in movies and we've had probably a literal boatload of ice cream this summer (for sure a kayak, maybe a dinghy) and we're doing yardwork when we won't melt or sink- we've had some wild weather- and I'm going to PT twice a week and we are still painting the basement around all the other things. If summer is supposed to be a time of rest then I'm pretty sure we're doing it wrong.

But if it's time to squish in as much stuff as possible, then we are probably doing "fair to middling" as the saying goes! 

Thing Three gets his braces off this week and is working albeit grudgingly on his required driving hours. Band camp will start up soon which is one of his favorite weeks.

Thing Two is jobhunting and living off PBJ despite us having all the meats. Dunno what he'd have done as a caveman. We giggle that he is indistinguishable from our plastic skeleton friend- the one currently on the front porch in swim goggles and swim trunks- both in circumference and paleness!

Thing One is plying tourists down South with caffeine and sugar at two different jobs and seems to be doing well despite the following text exchange:

Absolutely revolting start to the morning: smooshed a cockroach on the ground behind my counter and then five minutes later it appeared dragging its half-popped not-yet-corpse body along the edge of my counter.

To be fair, that's how a lot of people feel before coffee on a Monday morning. "I'm not dead yet."

Taking a stomp to the exoskeleton and then dragging all your innards up a vertical cliff is an entirely different ballgame...

I said "feel." "Must...get...to...Monday...morning...staff...meeting...nggghhh..."

Haha

***

Have a terrific Tuesday, everybody!

Oh shoot, I'm out of practice. Thanks to everybody who checked in about my blood clot! Poor Dada earned many gold stars for giving me all 60 Lovenox injections and now I'm back on twice daily Eliquis for the next few months. I have no movement restrictions so I'm going about business as usual, fighting through PT to get back range of motion and all the things. The party line seems to be "keep doing what you're doing and we will ultrasound the area this fall."

Me, shrugging, "okieeeedokieeeee."

AND today is my very last dose of the first year of a medication I'm to take for 3 years, so I'm a third done. Woohoo! My doc is pretty sure it's the main culprit behind my hair thinning, so it's looking like baby bird hair and no eyelashes or eyebrows for two more years. Good thing I didn't open the mascara I bought a year ago when it looked like they were finally making a comeback... it'll be all ready to go for back to school 2028! 

NOW y'all go and seize your week!

Monday, June 08, 2026

Keeping things interesting

 I used to be boring. Seriously. Before cancer, pre-2018, I'd never even had a cavity or a broken bone.

Now I have a blood clot.

I guess officially it is a DVT though it is in the upper inside of my beleagured right arm, not either leg. Never even thought about getting one there. Saturday morning I awakened to a more-swollen-than-usual hand and an arm that felt like it was someone else's but had been sewn onto my body. When I bent my elbow for a few seconds and then released, the skin went from pinkish-purple (not my usual skin tone) to yellow-white before returning to the shade of rose. 

Of course it was on a Saturday. Of course I'd just seen my oncologist and my PT gal on Thursday. So here's me, playing phone tag with the oncologist on call whom I've never met. He encouraged me to go to the closest ER but that one didn't have ultrasound availablility until Monday, so we rerouted to the hospital attached to where I had chemo, got my vascular ultrasound, and within 15 minutes of being finished was formally informed of the blood clot. However, the tech had already showed me on the screen the spot that didn't squish together under compression of the doppler wand, so I was unsurprised to get the news.

I have been on 2.5 mg of Eliquis as a preventative measure since my venogram on April 20th, with the hope that this wouldn't happen. I didn't really dream that it would be an issue, but here we are.

I discontinued the Eliquis and have been upgraded, lucky me, to twice daily injections of Lovenox for a month. On Saturday, the hospital gave me a dose and a half, I think, to tide me over until my prescription was filled. However, the pharmacy was out of stock and won't have it until today, so yesterday it was back to the hospital for another dose to get me through until I can pick up the meds. Thankfully, the ER doc from further away coordinated with the closer one so I was able to get yesterday's dose without the longer drive. I love it when a plan comes together.

Poor Dada had no idea what he was getting into when he vowed, "in sickness and in health" and probably never dreamed that he would be giving me shots in my belly, the outsides of my thighs, and the back of my left arm since the right is off limits due to the lymphedema. Once again, I am more medically interesting than I want to be!