Saturday, September 29, 2018

A gory details post

One might infer from the title that there will be material shown here which could make some readers uncomfortable. There's no shame in skipping this post. Read at your own risk. 

That said, I'll try to be sensitive as well. 

Here's me, pre-op, in my magic gown. You guys, this gown was so cool! When I was putting it on, I couldn't remember if the nurse had said to have it open in the front or in the back, so I of course assumed, "well, boob surgery would mean they're working on my front so it has to open in the front, right?" and that's how I put it on. Wrong! Haha! The nurse giggled at me and said, "everyone thinks that, but it actually is to open in the back" because there are all these cool layers to the gown including pockets that they can run tubes through which can warm or cool the patient accordingly. Magic! Whoever thought that up is brilliant. We fixed my gown and got me ready to go.


My OR people came in and introduced themselves. They asked me if I wanted a surgical cap of some kind and I asked if it was warm in the OR. One of the anesthesiologists said, "it's freezing in there" so I got a snazzy blue shower cap. He then gave me my calming, pre-op "margarita" mix, Dada kissed me good luck and they wheeled me into the OR. I remember looking up at the light bulbs that look like ice cubes in the huge light fixtures. I met a nurse who said his name was Mike, I remember the team saying something wasn't working right and that they needed another one... blood pressure machine, perhaps? And then I don't remember anything after that. Once again, I have no recollection of my surgeon or the head anesthesiologist being even in the room. I did not get a catheter, (big hooray!) or the breathing tube that heads clear down into your lungs (another big hooray!) I had what I think is called an LMA which is a tube that just lays at the top, back of your throat in case they need it for anything later. Less invasive and a not-as-sore throat later on. I only felt the soreness of it pretty much that same day and the next day.  



I think Dada said they started on me in the OR at 8:47 and I was wheeled into Recovery at about 10:40. I woke up and stared fuzzily at the large clock in Recovery at about 11:10 when violent shivers started. I told my nurse I wasn't cold but I was certainly quaking and she said the anesthesia does that. It didn't last too long and I got an extra toasty blankie out of the deal, haha! Since I didn't have to wait for a chest X-ray this time, I had some ice chips immediately and got to chat with my nurses as the underwater, operating on a slower record speed feeling when I turned my head faded. My surgeon came into check on me and asked if I'd decided if I wanted to stay overnight or not yet. I hadn't decided. Some of you are floored at what I've read online as a "drive by mastectomy", and believe me, I took that decision seriously, too. My surgeon and some of my nurses were strongly of the opinion that I'd sleep better and less interrupted at home and would therefore heal better. I suppose they also factor in the amount of germs in hospitals. It felt like it took me forever to decide and it wasn't because I was in any pain. I felt some hotness/burning sensation in the general surgery area but no actual pain. My surgeon had commented that people tell him mastectomy surgery hurts less than even laparoscopic procedures and I have to admit I didn't really believe him. However since this is Saturday and the surgery was Monday and I took absolutely nothing for pain yesterday at all, I guess he knew what he was talking about!

Once you're done in Recovery they send you to the next room to keep an eye on you. Dada was invited back to see me and I had one of the same nurses I'd had after my port surgery this spring, so that was really neat. She brought me more water and some Rice Krispie Treats, and kept a good eye on me. I did eventually decide I could go home the same day so she prepped my discharge papers and my folder of info I'd need to change dressings, how to take care of my drains which prevent fluid building up at the surgical sites (I have one on each side), signs to watch out for, etc. 





And the magic continued. They set me up with a scopolamine patch (thank goodness for Auto Correct finding that for me) which they stick to the skin behind your ear. It administers anti-nausea meds over a period of three days so you don't have any ill effects from the anesthesia. I was warned to not scratch it or touch it and then rub my eyes as it would dilate my pupils and then people would look at you funny, assume a head injury and order a CT scan. "Make sure you wash your hands. We've all done it" cracked my nurse with a roll of her eyes. The boys, of course, loved the idea of the patch with the magic medicine, and I did remember to wash my hands anytime I forgot it was there and scratched whatever itch was close to it. No dilated pupils or CT scans for me.


So I'm a stomach and side sleeper and obviously that isn't going to happen for awhile. Dada and Myron had disassembled our big red recliner and moved it upstairs so I would have a "nest". I've got multiple blankets, a side table for books/drinks/tissues/snacks/phone charger/desk lamp/etc so I'm pretty set for just about anything. Dada even dug out his travel pillow which has helped immensely and I'm about 15-20 paces from our bathroom. I finally learned my lesson last night and quit drinking about two hours before bed so I didn't need to be in there every two and a half hours, haha! Safe to say I've been well hydrated. Plus I have two pillows because I read I'm supposed to be propping my arms up. Lots to remember! I'm sure I'm not getting all of it right, but I seem to be doing really well, so I'm not stressing over it. 



And why these pictures decided to line up in the middle instead of along the left like all the other ones is beyond me, so sorry for those of you with OCD. My apologies.  

Ladies online mentioned a nail apron which costs about $1.50 as an excellent way to make sure you don't yank on your drains. The compression lines you see on my torso are because we've been using an ACE bandage over top of everything so stuff isn't coming loose, tickling too much, getting tugged on, and so forth. It reminds me of the big velcro wrap I was given after I had Damon. I told friends it feels good to put it on, and it feels good to take it off. The lump you see on my right side above the bandages is my port. It was being a butt and not letting the pre-op nurses draw blood from it, which is part of its job but it happens sometimes, so I do have a small bruise on the inside of my left elbow where a very apologetic nurse had to stick me. She was fast and efficient and a small needle stick was not truly one of my worries Monday morning, haha!


Some of you are Star Trek fans, whether you admit it or not, and if you remember the episode where Captain Picard is shown having been assimilated into Locutus of Borg, this next quote will make you laugh. Between my drains and my newly done landscaping I am Noboobus of Borg!


I have been having way more fun with this than anyone else, most likely because people are trying to be sensitive and don't want to be seen as crude, but also because the sooner I embrace my new reality the better I'll adapt. I'd made jokes all last week about my surgery approaching. Monday was my last Monday with boobs. Tuesday was my last day with tatas. Wednesday was my last hump day with humps. Thursday was harder, so I declared it my last happy hour with hooters. Friday was my last flash 'em Friday. Then I thought of Noboobus of Borg and cracked myself up. 

Humor is excellent medicine!

Then a sweet nurse friend advised to be sure I check my back during dressing changes because fluid can build up there as well and patients often don't realize it should be checked, too. Never would have dawned on me. As you can see, my back is in the clear. These were all taken Tuesday!


I have been absolutely floored at how normal I've felt. Everyone has cautioned to not let the pain get ahead of me. I'm thinking I must be doing something wrong because I don't have any! Granted I haven't walked into anything or been hit with anything or fallen onto anything this week, and I think I'm supposed to wait until the drains come out to start with the recommended arm exercises, but I've been slowing reaching farther and lifting light things and am doing really well. Showering with the drains is a bit trickier but there are lots of tips about that online, too. 

I have my follow up appointment all set for next week and I'm really looking forward to having the drains removed. They don't hurt at all, but they are encumbering, and I think psychologically it'll be a big milestone to have them gone. I am not looking forward to the intense itching I hear I will experience as everything heals, but even that is a sign of progress, so I'll take it. Again, I reserve the right to change my mind once it starts happening, haha. I am looking forward to experimenting with my wardrobe and at this point I'm not even talking about what will look good now that I'm flat- I simply mean what I'll be capable of pulling on over my head! This week has been all about the button downs, and I don't have or wear a lot of those so I've been raiding Dada's closet.  

Overall, my mental and emotional state has been one of relief and excitement. I did two biopsies and a port surgery. I'm done with chemo. I survived my bilateral mastectomy. The drains are absorbing decreasing amounts of fluid. I'm not in pain. I'm not thinking about radiation yet and don't have pathology results either to mull over yet. My village is overwhelming me with wonderful food, rides for the kids to their activities, prayers going up on high on our behalf, very gentle hugs, a stack of cards, and enough texts to blow up my phone. Thank you to all of you who have been part of this in any way, whether you are local and in hugging range or across the country and are sending support in other ways. Extra special thanks to my Mommee and Aunt Sherri who have been riding herd on the kids so Dada can focus on taking good care of me. I am so blessed. I know some of you might get sick of hearing it, but I'm telling you it is the absolute truth. I am so blessed. 

3 comments:

Christie said...
This comment has been removed by the author.
Christie said...

You ARE blessed and an AMAZING woman!
Sending love!

Unknown said...

You are gorgeous and hilarious as always!!! I'm so so so happy you are doing so well! Lurv, dana