I didn't die! What I remember and where I am now

 Hello everyone! *waves with left hand* This post will have some fun photos and some more sensitive ones, so viewers should proceed with caution, like one hand over their eyes (for some of you) and the knowledge that I'm okay! 

Sorry for the radio silence. My brain still feels a bit slow, but this is always good therapy so here goes. Please bear with me if I get distracted before proofreading or lose my place in the story, haha.

One week ago we headed into the city for surgery first thing Wednesday morning. Report time was 5 AM with surgery to start at 7. The night before was the usual nothing by mouth after midnight (just in case I were to turn into a Gremlin, I suppose) so in that sense it was nice to be there early; less time to feel sorry for myself due to hunger and dehydration. I get crabby from both!

That green circle, above, surrounds the little dimpled area of this squatting troublemaker. It's not truly in my armpit so much as just in front of it.

Below, the arrow points to the scar from where my port was during my year of infusions, the circle is over the previous scar from my right side surgical drain post-mastectomy, and the X marks the general area of the tumor. Ignore the hair- I wasn't allowed to shave in the days leading up to surgery. Not that anybody is looking that closely, just my disclaimer. 😅

We woke up at 4 AM because I needed my final of the 6 showers with the special super-duper sudsy germ killing soap first. That done, we snuck out of our friends' house and drove the not quite half hour to the hospital. They checked us in and immediately started to draw on me and initial their work so everyone is on the same page and body part and all that. 

                                                 

I had a sweet nurse who told me they'd get me an expert to start my IV, so then I had another sweet nurse come in to do just that and she nailed it on the first try. Woot! I met my surgery nurse and the anesthesiologist (holy COW, I got that right on the first try- no way!) and her assistant, and both docs came in to go over things, and then it was time to smooch Dada and get wheeled into my adventure!

                      

Gotta love my duck socks. And my fun compression boots that kept all my blood circulating and helped prevent clots while I was under anesthesia. These guys really know what they're doing! Everyone was incredibly kind, and let me tell you, I remember kissing Dada... and I have zero memory of even making it into the OR. Not kidding. Not being pushed through the doors, feeling the coldness of the room, not the bright lights, none of it. 

I didn't even get to use my bite sticks! I had one in my hand and was completely befuddled when I asked about the dye going in and how it feels like an angry hornet and they smiled at me and said, "oh no, we'll wait until you're sleeping for that." Could have knocked me over with a feather. Unbelievable. So I got to give that to Dada to put in my purse as I left him. Such good fortune! Hooray! No stinging!

And you guys, thanks for praying. One, I was not allergic to the dye. I am still bluish green in areas to prove it. Thank you! Two, apparently they had to do the long version after all and I didn't die! Dr A had not expected the lymph node mapping to work, and she was right, unfortunately. That meant after Dr A removed the tumor, surrounding tissue, and whatever lymph nodes were in there and attempted the mapping, Dr H also had to step in to reroute the severed lymph vessels into suitable veins. Apparently my previous radiation damage made that trickier in that he had to dig deeper to find recipient veins, but he was able to make five connections and was pleased. 

I woke up in recovery some time after all that and that's all pretty fuzzy. I know I vomited at least once- maybe when they tried to stand me up the first time? They said that happens often. 

One of the nice parts is that all of this procedure happened on the same floor: pre-op, the surgery, and the post-op care. No elevator rides, less chance of germs being handed around, no chance to get lost, haha. It was a really nice set up! My nurses, Abby and Alexis and Jesse and Chris were all fantastic, excellent educators, caring, kind, encouraging. I forget which person handed me the plastic tool that they want you to inhale from to make sure that your lung sacs are opening post-anesthesia, but she started to give directions and I took in a huge breath- the little indicator hit the top wall- and she laughed mid-instruction and said, "well, okay then, champ!" Guess all that walking and running this spring and summer made the odds ever in my favor. That and all your prayers, for sure! Thank you so much! 

I ate all my dinner, which was noodles, mashed potatoes, a roll and green beans- yes, Mother, there is visual proof in a photo below (I am NOT a fan of green beans)- and I didn't die! Haha. And my strawberry ice cream and later some orange sherbet with a turkey sandwich. I remember brushing my teeth later and wondering why my toothpaste was orange colored when I spit it out before I remembered about the orange sherbet. I think I also had another turkey sandwich around 4 AM...

They kept me overnight since I'd had the long version, and booted me out before 8 AM the following morning, sending me home with Tylenol and ibuprofen to alternate between, my inhaling-suck-it-in tool, two front-closing sports bras to help hold my dressing in place, gloves and wipes and all that jazz for Dada to use whilst emptying my surgical drain twice daily (fun times but not painful) and various dressings. 

And my duck socks. 

So now I'm colorful from the dye and the bruising:

The blue dots on my arm are where the plastic surgeon injected his own set of dyes to trace where the lymph vessels drained and to match with the veins. I also had blue dye injected into the webbing of my right hand between each finger. Mercifully I was asleep for all that. It is quite clear to me that I'd make a terrible junkie.

And I'm a bit rashy because of adhesives and cleansers, which is apparently a side effect of chemo because it happened then, as well. Benadryl helps and I know the itching won't be forever. Nothing like sporting weird racing stripes of rash in odd places and having one bumpy arm:

In addition to those itches, I had been warned ahead of time that post-surgery there would be light, tickly feelings on my right arm and that I'd need to rub it to desensitize those nerves and get them used to reporting in when something was actually touching me. Dada, who loves to give light tickly touches, was delighted. I am not a fan of light tickly touches because they tickle! Thing Two and I are firmly in the Firm Touches camp. I have indeed felt as though spider webs or Thing Two's hairs have been draped along my arm, or as though a drip of moisture is sliding down, and am brushing and rubbing and scratching gently accordingly. Mostly it feels like when you've slept funny and your arm is asleep, unusually heavy, right before the tingles of the blood rushing back in begins. Sometimes the skin gets stuck together in the adhesives that I have to let flake off. I'm allowed to shower but not let that part face the stream of water yet. So things get a little pinchy on that side.

I'm to not lift anything heavier than two pounds on my right side and I'm not to lift higher than 45 degrees this first week. If you want to know what that's like, go unload your dishwasher with your opposite hand and you'll have a pretty good idea. Get a gallon of milk out of the fridge with your off hand. Set a lot of things down so you can open the fridge or cabinet or door first and then pick the stuff back up with your "bad" hand. It's entertaining, but I am so astoundingly bad at brushing my teeth with my off hand, that I've gone back to using my chicken wing right side. 

I'm drinking lots of water, eating whatever I want, playing lots of solitaire on my phone and watching way too much TV, but I don't feel like I can focus on a book quite yet. This post alone has taken me about two hours, though there were some interruptions, including a thunderstorm followed by intense sunshine which resulted in this: 

Thank you again, all of you, for being invaluable members of my tribe. I am sure the docs will be pleased at my follow up appointments and I am healing well. I've gone from meds every four hours to meds about three times a day. I slept through the entire night last night and I can't tell you when that last happened! We're still waiting to hear if there was lymph node involvement so we know if I will need chemo in addition to hormone therapy, and I'm not sure when we will get those results. Thank you all so much. You are among my many blessings. 

A gory details post

One might infer from the title that there will be material shown here which could make some readers uncomfortable. There's no shame in skipping this post. Read at your own risk. 

That said, I'll try to be sensitive as well. 

Here's me, pre-op, in my magic gown. You guys, this gown was so cool! When I was putting it on, I couldn't remember if the nurse had said to have it open in the front or in the back, so I of course assumed, "well, boob surgery would mean they're working on my front so it has to open in the front, right?" and that's how I put it on. Wrong! Haha! The nurse giggled at me and said, "everyone thinks that, but it actually is to open in the back" because there are all these cool layers to the gown including pockets that they can run tubes through which can warm or cool the patient accordingly. Magic! Whoever thought that up is brilliant. We fixed my gown and got me ready to go.

My OR people came in and introduced themselves. They asked me if I wanted a surgical cap of some kind and I asked if it was warm in the OR. One of the anesthesiologists said, "it's freezing in there" so I got a snazzy blue shower cap. He then gave me my calming, pre-op "margarita" mix, Dada kissed me good luck and they wheeled me into the OR. I remember looking up at the light bulbs that look like ice cubes in the huge light fixtures. I met a nurse who said his name was Mike, I remember the team saying something wasn't working right and that they needed another one... blood pressure machine, perhaps? And then I don't remember anything after that. Once again, I have no recollection of my surgeon or the head anesthesiologist being even in the room. I did not get a catheter, (big hooray!) or the breathing tube that heads clear down into your lungs (another big hooray!) I had what I think is called an LMA which is a tube that just lays at the top, back of your throat in case they need it for anything later. Less invasive and a not-as-sore throat later on. I only felt the soreness of it pretty much that same day and the next day.  

I think Dada said they started on me in the OR at 8:47 and I was wheeled into Recovery at about 10:40. I woke up and stared fuzzily at the large clock in Recovery at about 11:10 when violent shivers started. I told my nurse I wasn't cold but I was certainly quaking and she said the anesthesia does that. It didn't last too long and I got an extra toasty blankie out of the deal, haha! Since I didn't have to wait for a chest X-ray this time, I had some ice chips immediately and got to chat with my nurses as the underwater, operating on a slower record speed feeling when I turned my head faded. My surgeon came into check on me and asked if I'd decided if I wanted to stay overnight or not yet. I hadn't decided. Some of you are floored at what I've read online as a "drive by mastectomy", and believe me, I took that decision seriously, too. My surgeon and some of my nurses were strongly of the opinion that I'd sleep better and less interrupted at home and would therefore heal better. I suppose they also factor in the amount of germs in hospitals. It felt like it took me forever to decide and it wasn't because I was in any pain. I felt some hotness/burning sensation in the general surgery area but no actual pain. My surgeon had commented that people tell him mastectomy surgery hurts less than even laparoscopic procedures and I have to admit I didn't really believe him. However since this is Saturday and the surgery was Monday and I took absolutely nothing for pain yesterday at all, I guess he knew what he was talking about!

Once you're done in Recovery they send you to the next room to keep an eye on you. Dada was invited back to see me and I had one of the same nurses I'd had after my port surgery this spring, so that was really neat. She brought me more water and some Rice Krispie Treats, and kept a good eye on me. I did eventually decide I could go home the same day so she prepped my discharge papers and my folder of info I'd need to change dressings, how to take care of my drains which prevent fluid building up at the surgical sites (I have one on each side), signs to watch out for, etc. 

And the magic continued. They set me up with a scopolamine patch (thank goodness for Auto Correct finding that for me) which they stick to the skin behind your ear. It administers anti-nausea meds over a period of three days so you don't have any ill effects from the anesthesia. I was warned to not scratch it or touch it and then rub my eyes as it would dilate my pupils and then people would look at you funny, assume a head injury and order a CT scan. "Make sure you wash your hands. We've all done it" cracked my nurse with a roll of her eyes. The boys, of course, loved the idea of the patch with the magic medicine, and I did remember to wash my hands anytime I forgot it was there and scratched whatever itch was close to it. No dilated pupils or CT scans for me.

So I'm a stomach and side sleeper and obviously that isn't going to happen for awhile. Dada and Myron had disassembled our big red recliner and moved it upstairs so I would have a "nest". I've got multiple blankets, a side table for books/drinks/tissues/snacks/phone charger/desk lamp/etc so I'm pretty set for just about anything. Dada even dug out his travel pillow which has helped immensely and I'm about 15-20 paces from our bathroom. I finally learned my lesson last night and quit drinking about two hours before bed so I didn't need to be in there every two and a half hours, haha! Safe to say I've been well hydrated. Plus I have two pillows because I read I'm supposed to be propping my arms up. Lots to remember! I'm sure I'm not getting all of it right, but I seem to be doing really well, so I'm not stressing over it. 

And why these pictures decided to line up in the middle instead of along the left like all the other ones is beyond me, so sorry for those of you with OCD. My apologies.  

Ladies online mentioned a nail apron which costs about $1.50 as an excellent way to make sure you don't yank on your drains. The compression lines you see on my torso are because we've been using an ACE bandage over top of everything so stuff isn't coming loose, tickling too much, getting tugged on, and so forth. It reminds me of the big velcro wrap I was given after I had Damon. I told friends it feels good to put it on, and it feels good to take it off. The lump you see on my right side above the bandages is my port. It was being a butt and not letting the pre-op nurses draw blood from it, which is part of its job but it happens sometimes, so I do have a small bruise on the inside of my left elbow where a very apologetic nurse had to stick me. She was fast and efficient and a small needle stick was not truly one of my worries Monday morning, haha!

Some of you are Star Trek fans, whether you admit it or not, and if you remember the episode where Captain Picard is shown having been assimilated into Locutus of Borg, this next quote will make you laugh. Between my drains and my newly done landscaping I am Noboobus of Borg!

I have been having way more fun with this than anyone else, most likely because people are trying to be sensitive and don't want to be seen as crude, but also because the sooner I embrace my new reality the better I'll adapt. I'd made jokes all last week about my surgery approaching. Monday was my last Monday with boobs. Tuesday was my last day with tatas. Wednesday was my last hump day with humps. Thursday was harder, so I declared it my last happy hour with hooters. Friday was my last flash 'em Friday. Then I thought of Noboobus of Borg and cracked myself up. 

Humor is excellent medicine!

Then a sweet nurse friend advised to be sure I check my back during dressing changes because fluid can build up there as well and patients often don't realize it should be checked, too. Never would have dawned on me. As you can see, my back is in the clear. These were all taken Tuesday!

I have been absolutely floored at how normal I've felt. Everyone has cautioned to not let the pain get ahead of me. I'm thinking I must be doing something wrong because I don't have any! Granted I haven't walked into anything or been hit with anything or fallen onto anything this week, and I think I'm supposed to wait until the drains come out to start with the recommended arm exercises, but I've been slowing reaching farther and lifting light things and am doing really well. Showering with the drains is a bit trickier but there are lots of tips about that online, too. 

I have my follow up appointment all set for next week and I'm really looking forward to having the drains removed. They don't hurt at all, but they are encumbering, and I think psychologically it'll be a big milestone to have them gone. I am not looking forward to the intense itching I hear I will experience as everything heals, but even that is a sign of progress, so I'll take it. Again, I reserve the right to change my mind once it starts happening, haha. I am looking forward to experimenting with my wardrobe and at this point I'm not even talking about what will look good now that I'm flat- I simply mean what I'll be capable of pulling on over my head! This week has been all about the button downs, and I don't have or wear a lot of those so I've been raiding Dada's closet.  

Overall, my mental and emotional state has been one of relief and excitement. I did two biopsies and a port surgery. I'm done with chemo. I survived my bilateral mastectomy. The drains are absorbing decreasing amounts of fluid. I'm not in pain. I'm not thinking about radiation yet and don't have pathology results either to mull over yet. My village is overwhelming me with wonderful food, rides for the kids to their activities, prayers going up on high on our behalf, very gentle hugs, a stack of cards, and enough texts to blow up my phone. Thank you to all of you who have been part of this in any way, whether you are local and in hugging range or across the country and are sending support in other ways. Extra special thanks to my Mommee and Aunt Sherri who have been riding herd on the kids so Dada can focus on taking good care of me. I am so blessed. I know some of you might get sick of hearing it, but I'm telling you it is the absolute truth. I am so blessed. 

Goliath is down!

*Viewer discretion is advised for photographic content*

Once again, I am humbled and blessed by the faithfulness of my mighty God. In a week full of scary firsts, he held me close through every medical test, chemotherapy administration, and port placement surgery, not to mention keeping all 3 Things safe on their field trips, rides to and from and during karate, and Real Life in general. I truly do not understand how those who choose to do life without God can even summon enough courage to get out of bed in the morning.

Some of you know from my frantic "I am going to bite something, someone, anything" texts how badly I cope at waiting while being hungry and thirsty. I was instructed to eat or drink nothing, not chew gum, not consume mints, nothing after midnight on Thursday in preparation for the port surgery Friday around lunch. For those of you keeping track, that meant this Hobbit would miss breakfast, second breakfast, elevensies, luncheon, and perhaps not be eating until afternoon tea, which is just about as unacceptable as it gets for a poor, pitiful, pathetic Hobbit whose brain felt like it had shriveled to the size of a raisin in the back of her head by the time she was rolling into surgery. I've tried to be really, really good about drinking especially as I want my veins to be stab-able on the first try! To not have any water in me was terrifying, and I wasn't sure they'd be able to use the IV needle that my kind oncologist's office had left in just in case.

Thankfully they were after flushing it and making sure there were no signs of infection brewing. I was still poked to give blood, but Steve was quick and compassionate and so sweet that he made the first few tears fall. For whatever reason, it is so hard sometimes to be on the receiving end of kindness. Sometimes I wish they'd just be brisk and then leave, but the extra encouraging word just about breaks my heart.

Soon enough we met with the surgeon one more time to go over what would happen, and then met the anesthesiologist who had his own questions to which I answered, "I'm a boring patient." He grinned at me and said he liked boring patients. I felt like I was in good hands. The friendly, cute nurses came to stick in my relaxing, "pre-anesthesia margarita" (as my Aunt Chris calls it) and wheeled me off to the OR. 

I remember commenting that Liam would love the OR because the lights reminded me of an octopus, the huge digital clock on the wall, the myriad of Stuff I'd never know the purposes of. I met another nurse but didn't catch her name. I don't remember anything else. 

Apparently, according to Dada, while under general anesthesia, I grilled my surgeon about if he'd always wanted to be a doctor. I don't even remember seeing him or the anesthesiologist enter the room! I can just hear Nana laughing about "how nebby" I am... nice to know that my subconscious and my mouth still take over even when I'm under. Yikes.

When I woke up in recovery there were more nurses to meet, and my sweet friend Cheryl from mammograms came to take my chest X-Ray, a precautionary measure after port insertion as that procedure does involve sticking a needle and catheter into a big vein. They could potentially puncture a lung, hence the "before you go anywhere, you're getting an X-Ray" habit. In my case, all was well. Yay! Good job, everybody!

I think I spent close to an hour in recovery, looking around, watching the nurses, hearing the heartbreaking cough of a small person, chitchatting with whichever nurse was checking on me, finally some ice water after my X-Ray showed all was well, and I think my surgeon came in to say the first spot they tried twice didn't work so they had to move to plan B, which was something we'd covered ahead of time.  

They wheeled me out to the post-recovery place where I was allowed to get dressed with Dada's help, went over how to take care of things, some more chit chat to yet another friendly, smiling nurse. I was released with a scrip for pain meds and sent on my way with well-wishes.

Every single person there was once again, kind, thoughtful, comforting, encouraging. Thank you God for the medical personnel you have in my life!

We dropped off my scrip, headed to one of our favorite down town restaurants where I finally got to dig into some fries and a BLT and the best ice water with lemon I swear I've ever tasted. Then Dada ordered pie a la mode and I ate almost all his ice cream.

We picked up my meds, including an allergy med and Aleve which I'm supposed to take during and after my infusion for my white blood cell booster. 

We went home and tucked me into a big chair with my snazzy fancy blanket from my girls where I zoned out with a few episodes of Star Trek- The Next Generation. Yes, I'm a nerd. I wasn't sure I'd have the brain power to stay awake through anything with real thought required. I almost dozed off multiple times as it was.

Dada brought me an ice pack for over my incisions and a heating pad for over the back of my neck and shoulders, which was definitely the sorest part. I must have been propped up pretty high during the surgery or something because my range of motion as far as turning my head went is still a little affected. The heating pad worked wonders and I might replace it again tonight. I went to sleep with it and the ice pack and slept about 4 hours with them mostly in place before I woke up to use the bathroom and drink some more. I got several more hours of sleep until the morning noise around here (i.e. Bosley and birds) got too distracting. I needed to drink some more and use the bathroom again anyway, haha.

So I took all my meds that I needed to take for the first half of today, had breakfast, and headed off to karate graduation, which went very well. I sat with two of my best karate mom friends and my family and watched Damon receive his black belt! Yay kiddo! Lots of hard work went into that, let me tell you. I'll post pictures as soon as I get them from Dada's phone to mine...

Yet another thank you to every person who has been praying, for those of you sticking me on the prayer lists you know about, for lifting me up, for sending me cards and Stuff, for the cookies and the texts and the love that we are feeling every step of this journey. I can't express how amazing it is to be so covered! Thank you! You are wonderful and I am so thankful that God has put you in my life!

I realize this is a private photo and much thought has gone into placing it here where it will no longer be private. The truth is that this is all crazy and confusing and will very likely get much worse before it gets better. I don't know what five more sessions of chemo will do to me other than hair loss for sure. I have no idea what kind of future surgery awaits me, what the scarring from that will look like inside where nobody can see it and out where the whole world could, or how I will feel when this whole adventure is over and I'm proclaimed in remission, should that be God's will. 

I picked this one because I am smiling. I am upright and healing. I look strong after what has been the hardest week of my life. 

"You made all the delicate, inner parts of my body and knit me together in my mother's womb. Thank you for making me so wonderfully complex! Your workmanship is marvelous- how well I know it. You watched me as I was being formed in utter seclusion, as I was woven together in the dark of the womb. You saw me before I was born. Every day of my life was recorded in your book. Every moment was laid out before a single day had passed." ~Psalm 139:13-16

"She is clothed with strength and dignity, and she laughs without fear of the future." ~Proverbs 31:25

Goliath never stood a chance.