Friday, July 13, 2018

Two profiles (and straight on) of cancer


Obviously the above photo was taken awhile ago, April perhaps, back when I had enough hair that it tried to strangle me in my sleep. 

The photos below were taken this morning. Dada actually got the light flashing on what I call my "Glade plug-in", my Neulasta patch that pumps an infusion into me to kick my bone marrow into high blood cell production. Technology can be absolutely fascinating. After chemo yesterday, my sweet nurse Jenny attached it to my arm after programming it to go off in 27 hours. It clicks and beeps and stings me once like a bee, which inserts a tiny catheter into my arm that will allow the infusion to proceed once the 27 hours have passed. In other words, I get to take my meds with me and not make another trip back to the oncologist the day after chemo. When my timer is up, it will beep long enough for me to notice that, no, it's not the coffeemaker or the microwave, "oh, wait, that's me, haha!" Then it pumps in my meds, clicks and beeps again when it's done about 45 minutes later, and I can then have it removed and shower or take a bath or go swimming or whatever. I take it back to the doc the next time I go and they recycle it as it counts as a "sharps" and shouldn't be just pitched in the trash. Fascinating! AND I get to look like a lightning bug overnight. How cool is that?



This selfie is from today. Eyeliner, earrings from my Daddee, necklace from my friend Ann, bandanna, good to go. Since I've been wearing bandannas in one form or another since junior high (no joke, some of you remember, and that was way before camp) it hasn't fazed a lot of you to see me in them. You probably have to work to remember that my real head doesn't have one attached, hehe! The shirt, from my friend Julie, is accurate. My friend Rachel took me to chemo yesterday and we were talking about what takeaway lesson(s) might be part of this whole experience. I knew right away and said that one of them, "is to show me how loved I am." Some of you are probably shaking your heads, thinking, "this girl has lost her brain cells to chemo brain for sure." Truly though, if I were to make a list of everyone who has stepped into this mess with me, you'd be amazed. I feel like I could change the sayings, "there's an app for that" or "I've got a guy for that" to "I've got a friend for that." God has blessed me incredibly. My friend Cammie used to say that she felt like she was God's favorite little child, but I think she must have scootched over for me to be beside her under that heading, because in spite of my disappearing eyebrows and eyelashes and Immodium with me everywhere I go, I am being loved on in ways I can't even imagine. I know there are some of you I may never even meet who are praying for me and that just blows me away. Thank you! 


And whoever sent me the box of Scripture flips with no note, it got here safe and sound yesterday, and delighted me. If nobody claims it, I'm going to declare it mailed directly from Heaven from my friend Jan who kicked off a moms' Bible study years ago where I made some of my very best girlfriends. She is the one who taught us to get index cards and work our way through the Bible, claiming God's promises and writing them down and keeping them with us to use them in real life. I have more than one set in various purses and Bible study bags, haha. So thank you, friend!

And thank you to all of you once again who are beside me on this journey no matter how far away you may be physically. We are touched each time by your love. And YOU are loved right back!

Chemo yesterday went very smoothly despite me having to pee four times while I was there, haha. I think that's a record so far. I may have already mentioned my Gramps used to say, "I gotta go so bad my false teeth are floating..." Still cracks me up. I inherited my love of plaid (and wearing more than one plaid pattern at once) from him, as well. He still makes me laugh though he's been gone for 15 years now. He reported for guardian angel duty 10 days before Carrie was born, and I can't tell you how many times I've heard him laughing over these ridiculous children we have...

Here are the numbers from yesterday, so if you're not interested, you may be excused. White blood cells were at 10.26, Hemoglobin still a little down but in the normal range right at 10.0 (I think 12 is a magic number- my nurse friends will be happy to set me straight in the comments), and platelets were 157, which I think is also down from last time but they said no worries. Rachel and I laughed over the graphs, which don't make any sense to me anyway, but especially over the oh-my-goodness-I-don't-have-any-white-blood-cells! 


And once again, a shameless plug for the comedy "What's Up, Doc?" starring Barbra Steisand, Madeleine Kahn, Liam Dunn, and a host of others, here are the meds I'm taking this morning. My brother is already reciting from memory, "see this little yellow pill, Bailiff?" "Yes, Judge. What's it for?" "To remind me to take the little blue pill." "Uh, what's that one for, Judge?" "I dunno. They're afraid to tell me."


Don't be alarmed. Today is the heaviest day of meds- cancer treatment does not usually look like this for me. Today is the last of three days a month I take the steroid which helps with the side effects of Taxotere, one of my chemo drugs. The other two are anti-nausea meds to also help. Yesterday, drugs like this were part of my IV cheerleader combo before they begin the chemo drugs, so I didn't need to take them orally also. I take them today and tomorrow and then as needed. Thanks to the meds and your prayers, I have not vomited at all and I am now 2/3 done with chemo! The vitamins I take everyday, along with the allergy med which has links to reducing bone pain from the Neulasta patch when the bone marrow starts cranking out the extra production. It worked like a charm last time and I had no bone pain at all that round. I mentioned that this dose is 10mg and the recommended one was only 5mg so maybe that's why. At any rate, I'm sticking with it. Round #5 will be in three weeks and then round #6 will be in six weeks on our second day of school and then this aspect of life will be done. 

Once my numbers stabilize I will have surgery and yes, I did get my surgical consult moved up an entire month so I feel better about that. I still have questions but did discover yesterday that according to my oncologist most of the reconstruction surgeries are not silicon or saline like I'd imagined but are actually the ones involving the tummy tucks. Who knew? Why does that matter? Well, perhaps I will be less pressured into something I am fairly sure I don't want and can actually be encouraged by the portfolios or photos or whatever will be shown to me at the consult. Again, just going off of what I've heard and thought at this point, I have no real basis personally yet. I'll keep you posted! Thanks again for the prayers- I'm proof that they are working!





1 comment:

Unknown said...

😉 I have some understanding of what you are speaking about being sourounded by God sent people.I had a rough spell before and like they did for you, so many stepped up for me, Oh wait, you already knew this, you and your family stepped up for me. What a blessing I was given, and you deserve so much more. God Bless